“Just Enough” sugar for Life’s Lemonade.

March 15, 2012

Uncategorized


Shared from tasteofhome.com

“One should take children’s philosophy to heart.  They do not despise a bubble because it bursts.  They immediately set to work on another one.”  ~ Keynote

As you know by now, while we as a family and myself personally move forward constantly “trying” to add more and more sugar to our proverbial lemons to make sweet lemonade, there are times when the sugar runs low.  When I can’t seem to find a cup to borrow from a neighbor because I don’t have the energy or the heart to ask, or if perhaps if there is still some left, I don’t have the wherewithal to continue to dig deep into the container to scoop out what little seems to remain.  I get tired.

Hour after hour I sit on our increasingly greying once-khaki-colored carpet repeating exercise after exercise with E. Pushing her while rationalizing and assessing her protests with a highly-trained interpretive ear.  Agitation, irritation, frustration, pain.  Each noise is a different variation of wounded animal.  If I didn’t know for sure that it was my eggs and KSP’s swimmers that created her, I might think that someone at my fertility clinic mixed in a tiger and/or a shark based on her cries and the sharpness of her teeth.

The cries or giggles depending on the day vary based on her tiredness, the status of her teeth and the “situation” with her bowel movements.  She pushes on and so do I.

6 weeks ago as I started out in my new phase of working from home, I set a goal for her, for us, that she would be able to sit up from a lying position on the floor in a months time.  It’s a huge milestone to be able to get off your back into a sitting position.

As the weeks and the repetition progressed she came closer and closer to just getting there….almost, just another iiiiinnnnchhh…and back she would fall.

Motor planning disorders are tricky business. You are literally teaching the brain the sequence of movements it needs to achieve a

From Psychologytoday.com

goal, movement by movement. For anyone who has been pregnant, remember back to when you were quite large and you wanted to sit up from a lying down position.  You had to think about rolling to your side to then push up from your side to then rotate your body to finally be in a seated position.  Within the movements I just described there are several more, small minute points that you must accomplish in order to reach that seated position. For all of you men out there, think about this the next time you are on the floor of your TV room watching something and go to get up.  When you start to connect the dots, it’s not so easy.

They say it takes 2,000 hours of repetition to train the brain to pattern a movement.  That’s a lot of hours and a lot of hope fed into each repetition.  Hope that perhaps this time it will work. That this time you are so close.  In some ways, it’s like trying to get pregnant once you decide you want to have a baby. Every month you think you have all the symptoms so perhaps,this month it worked.

At some point you run low on your reserves of sugar for the lemonade. All the work and the hope drain you physically and emotionally, but then sometimes all you need is “just enough” sugar and out of nowhere your container is full again.

The 30 day window for our goal had come and gone but really only existed to give us something to work toward.  My hope was not hung on the timeframe, it was hung on signs of progress.  E was progressing nicely but she just couldn’t seem to get over the final hump. We had plateaued for a bit.

Yesterday as I settled onto the floor, I could feel the wear and tear.  The slow creeping exhaustion, my reserves were low. I silently asked for progress. Just a little something.

With E’s 2 year molars pounding relentlessly on her gums, she has been attached to her Sophie giraffe.  I used to make fun of that giraffe as the world’s most expensive chew toy, but as E and Q’s fondness grew, so did my own and as of yesterday Sophie officially became my hero as I think she heard my silent plea.

Meet Sophie, the world's most expensive chew toy and my new hero.

As I held Sophie off to E’s right side and frantically pressed in and out to which she responded with frantic squeaking, E reached toward her. I could see the strain and she buried her right hand into the carpet for support as she reached, stretching, desperate to grab the squeaking Sophie.

Squeak, squeak, squeak….the sounds of E straining with delight got louder as did my shouts.

“Reach Emma, reach! Keep going, you can do it! Come get Sophie.”

My hands wanted to reach out and give her the input to get her body to cross over. With one leg straight as an arrow she had to find the strength in her core. And then, in slow motion, she reached, she rotated in the air and she grabbed Sophie and there she was sitting up for from a lying position on the floor for the first time ever.  On her own, with no help. At 2 years, 4 months and 26 days,

I shrieked with glee, grabbed her, hugged her tightly and bounced her in front of me as she stuck Sophie’s head in her mouth to drool all over her now spotless head.  With saliva running down her chin, I excitedly kissed her tiny features.

She had worked so very hard for this moment and in the end, Q, me, my dad, Nana H and Sophie all bore witness to this greatest of achievements. A step toward more independence and “just enough” to keep us moving forward with hope. Yesterday a request for “just enough” sugar today became an overflowing sugar container with ever so so sweet lemonade for all.

Sometimes life overwhelms us, drains our strength, demands more than we think can give.  In those times we sometimes need “just enough” to keep our sugar container from being empty. “Just enough” to keep us going. A call from a friend, an encouraging word, a small reminder from a squeaking giraffe and we can keep going, we can keep the hope alive and we have far more strength and hope that we ever knew possible. Our children in their purity and innocence celebrate the moments. They celebrate each new bubble instead of focusing on the ones that burst or never inflate.  Today, I opened a bottle of bubbles and as I blow them, I am reminded that in that breath, is ‘mynewfavoriteday.’ If someone you know may be low on a little sugar for their life’s lemonade why not reach out and just offer a cup. It can make it a ‘newfavoriteday’ for you both.

Linking up with Bruna at “Let Bee Friends Friday!”

Let's BEE Friends

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About Shannon Pruitt from 'Mynewfavoriteday'

Welcome to 'mynewfavoriteday. This space is about gratitude and connecting through being open, vulnerable and real. I hope you will enjoy my take on motivation, inspiration and advocacy and will take the opportunity to tell me of your own thoughts and stories. Why I started 'mynewfavoriteday.' I am a childhood surviving, divorced, now happily married, IVF (and now natural pregnancy) success story, working mother of 2 amazing babies who were born 12 weeks premature. As life often seems to surprise you when you least expect it, we added another sweet baby girl M to our family in July of 2013. While our angel minis, Q and E are now 7 years old, our son, Q, has thrived while our daughter, E, has had a much more difficult journey. She is considered special needs and in September of 2012 was diagnosed with a rare genetic disorder called Angelman Syndrome. And so, as she has grown, so do we as individuals and as family. How to help her, how to celebrate our differences while allowing ourselves to cope with the challenges that we never knew to expect. Thus, while much of this blog is based on our experiences (good and not-so-good), it is also based on how we must not let ourselves become victims of our circumstances but rather advocate in our own lives. A little bit about me and who I am. In my professional life I am a marketer in the Entertainment Industry; however, ‘mynewfavoriteday,’ was not born of entertainment or marketing but rather as a pathway to help myself and others as we try to define who we are as parents, family members, spouses, friends, colleagues and people. I believe in never judging a book by its cover. Every cover is different, and no matter what your cover looks like, you never know how someone's book is written. Like mine. From the outside, you might never know what truly makes me who I am or what I believe. This blog explores the pages on the inside of my book. My vulnerabilities, fears, happiness, and all my triggers through the lens of being grateful for all the amazing blessings I know I have received but sometimes forget in the challenges of daily life. Thanks again for dropping by. I hope you will come back, subscribe, comment, share, and/or just hang out and be inspired or motivated to make each day for yourself or someone else 'anewfavoriteday.' By being here, you have certainly helped to make it mine. xo, Shannon

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22 Comments on ““Just Enough” sugar for Life’s Lemonade.”

  1. Running from Hell with El Says:

    Aw my friend, wow. I am overcome after reading this. xo.

    Reply

  2. mother.wife.me Says:

    Another beautifully written and beautifully thought out post from you! Hurrah for E and you and your family.

    My cousin’s son is coming over to the States at the end of this month to have his SDR surgery, we reached our goal of raising £45K for the trip a couple of weeks back. I will share this post with my cousin, am sure she will appreciate it xx

    Reply

  3. tracy peterson Says:

    Incredible! What a huge moment for you both and your family!!! cover that face with lots of kisses from her auntie and her cousins… and don’t forget Q, too!

    Hugs and loves to you all!!

    Reply

  4. omgyummy Says:

    What a beautiful post and congratulations on such a wonderful milestone. It brought tears to my eyes. I have a special needs/neurodiverse child, but have never had to manage physical challenges. Keep filling that cup and finding your new favorite day! I am so impressed.

    Thanks for stopping by my blog!

    Reply

  5. Chris Says:

    Yes! How beautiful. And congrats to E and all of you for her and your perseverance! I know how difficult those times can be. Your analogy of “just enough” sugar suddenly overflowing with sweetness. Gol-ly, those are the moments that make everything worth it, aren’t they?

    Every time I read your blog, my gratitude toward you (and toward Deb for introducing me to it) grows.

    Reply

    • Shannon Pruitt from 'Mynewfavoriteday' Says:

      Thanks so much Chris. She is the star we are just her moving the space trash out of the way so she can do what she is destined to do:) Those moment do indeed make everything, every moment, every trial worth it. You know it well. Thanks for your kind words about my blog, it brings me such joy and gratitude!

      Reply

  6. Anita Larson Says:

    Reading your account of this incredible milestone has left me breathless. Your writing allows us to share your struggles, your successes and your failures. The lemonade is extra sweet today! Thank you for the taste.

    Reply

  7. amy Says:

    how inspiring – how true!

    Reply

  8. Katy Says:

    Hooray!!! And beautiful story telling S.

    Reply

  9. Ardelle Kanode Says:

    WOW! That’s the only thing I can think to say right now. With coffee in hand, I sat down to check my emails, and found your post. Your writing is an inspiration to so many. WOW. Thanks for sharing.

    Reply

  10. singleworkingmomswm Says:

    Awesome-completely and totally. What a sweetheart you have, and I felt my insides jumping around as I read…waiting…waiting…aha! She did it! Yay! I needed this amazing inspiration today, as so many others have expressed, as well. My sugar has been running low this week, too, for different reasons, but the feeling being the same. I’m so happy that you are willing and able to write and share about this wonderous (albeit tiring at times) experience. Way to go E, and way to go, Mom!! 🙂 XOXO

    Reply

  11. Jessica@Team Rasler Says:

    I swear I wanted to cheer out loud when she did it! (I would have, too, except my husband is working and he would’ve given me a glare.) SO glad you got the encouragement you needed just when your reserves were running low. Your analogy of the sugar is lovely, too. Three cheers for all of you!

    Reply

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