Look into my eyes…An early Halloween Treat.


The Wondertwins at Mr. Bones Pumpkin Patch

I have looked into your eyes with my eyes. I have put my heart near your heart.” ~ Pope John XXIII

It was a weekend filled with “normal” parent-with-children activities.  To be totally honest, I still find some of this “normalcy” tiring in a different way than when I was chasing watermelons down the street (way more normal). However, it was also filled with some very small baby steps, which were definitely milestones for this family thus still grounding me in our roots that “our normal”  has not always been filled with Pumpkin Patches, parks, and shopping, and that our normal still involves celebrating even the slightest development, because for us many of these tiny developments are the most major of steps forward.

It really started Saturday morning.  KSP was out of town so I was doing our usual morning routine and as I called Q over to say, “it’s time to brush your teeth.” Out of nowhere as he toddled toward me, he parroted back “tees.”  I laughed out loud, yelping a bit like a hyena and nearly scared him so that he fell down, but when he righted himself  I asked him to say it again.  “Tees,” he said again with a huge smile.

With therapists in and out of our house constantly interacting with E, Q gets the halo effect of these therapies, in the best way but also in the way that leads to questions.  When other people are around, he does not babble on and on and chatter away to me, Nana H. or E.  Instead, he acts as if he knows it’s E’s time, which means he quietly plays in and around E and her therapist.  As time has gone on, almost every one of E’s therapists has asked about his words, and how he is doing. I always say he is doing well and he talks non-stop but for some reason when everyone else is there, he tends to be more quiet.

They always nod quietly, and tell me that between 2 and 3 he should develop into a 200-300 word vocabulary. I always know what they are implying but I also know that for Q, there have been people, strangers around him literally from the day he was born. He has always be a bit shy but warms up quickly and that he talks constantly with us, and so I truly, “mostly” believe  it will be just in his time when the words will flow. Don’t get me wrong he has 35 words or so that we understand, but he doesn’t string them together and there had been a bit of a plateau, until yesterday.  As I pointed to different features on his face, he went through them all in his sweet baby voice, Tees, Maus, nos, eye, braw, ea (most of the time it’s only parents that can understand these words, can you tell?), I was amazed and thrilled. I also breathed a little sigh of relief.

Sunday too, was laced with the most spectacular development.  Persistent eye contact from E.  She was not looking at my forehead or my chin, she kept looking into my eyes. Over and over, at different times during the day.  For 30 seconds at a time. Smiling, happy, like she had been doing it all along, but telling me with her eyes, that she knew how long I had been waiting and that maybe it’s now time. Maybe now she is ready.  She made no promises but her smiles, her eyes and her heart told me this was my special gift, my Halloween treat.

While I will hold at hope that it’s not a trick… I will celebrate this little baby step like a major milestone and relish in the joy that I feel of feeling her look into my eyes and into my soul.

Today, as we prepare to become Pebbles and Bam Bam and settle into a day of fun and games, I will feel real joy.  The gratitude in my heart for every little improvement, to be able to look back from where we came and know just how far we have come.  Last year at this time, E was on oxygen, she was barely responsive to any of us, and today she looks at each of us and smiles like a rainbow, to say that today is ‘mynewfavoriteday’ would be to understate how I feel.

How I am so excited to put the wondertwins in their costumes, to take them to a little Halloween party, to watch them watch everyone else and interact and not be fearful of them getting sick, having a setback or keeping them sheltered from everything and everyone.

It’s a special day, we can all let go a little more. I hope for you today you can find this same feeling of gratitude and joy in your heart, for small things that can be big things for you, or just small things that all add up to make you happy. Happy Halloween!

Here are some pictures of  some of our early Halloween treat time:

Q has some fun in the pumpkin patch.

E meets her first pumpkin

This Halloween thing is pretty great

This duck definitely needs more hay in his water.

KSP holds our little prize fighter

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About Shannon Pruitt from 'Mynewfavoriteday'

Welcome to 'mynewfavoriteday. This space is about gratitude and connecting through being open, vulnerable and real. I hope you will enjoy my take on motivation, inspiration and advocacy and will take the opportunity to tell me of your own thoughts and stories. Why I started 'mynewfavoriteday.' I am a childhood surviving, divorced, now happily married, IVF (and now natural pregnancy) success story, working mother of 2 amazing babies who were born 12 weeks premature. As life often seems to surprise you when you least expect it, we added another sweet baby girl M to our family in July of 2013. While our angel minis, Q and E are now 7 years old, our son, Q, has thrived while our daughter, E, has had a much more difficult journey. She is considered special needs and in September of 2012 was diagnosed with a rare genetic disorder called Angelman Syndrome. And so, as she has grown, so do we as individuals and as family. How to help her, how to celebrate our differences while allowing ourselves to cope with the challenges that we never knew to expect. Thus, while much of this blog is based on our experiences (good and not-so-good), it is also based on how we must not let ourselves become victims of our circumstances but rather advocate in our own lives. A little bit about me and who I am. In my professional life I am a marketer in the Entertainment Industry; however, ‘mynewfavoriteday,’ was not born of entertainment or marketing but rather as a pathway to help myself and others as we try to define who we are as parents, family members, spouses, friends, colleagues and people. I believe in never judging a book by its cover. Every cover is different, and no matter what your cover looks like, you never know how someone's book is written. Like mine. From the outside, you might never know what truly makes me who I am or what I believe. This blog explores the pages on the inside of my book. My vulnerabilities, fears, happiness, and all my triggers through the lens of being grateful for all the amazing blessings I know I have received but sometimes forget in the challenges of daily life. Thanks again for dropping by. I hope you will come back, subscribe, comment, share, and/or just hang out and be inspired or motivated to make each day for yourself or someone else 'anewfavoriteday.' By being here, you have certainly helped to make it mine. xo, Shannon

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2 Comments on “Look into my eyes…An early Halloween Treat.”

  1. Michelle Reeves Says:

    Beautiful! I can’t wait to see them this week.

    Reply

  2. tracy Says:

    beautiful! can’t wait to see them in their costumes!!! please tell me you talked KSP into it!!! 🙂

    Reply

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