Hope: Free, Faith: Free, Love: Free,


Finally getting off 24/7 oxygen support: Priceless

Baby E, Pure Joy

Congratulations to our precious E, who was told yesterday by her pulmonary doctor that we can take her off oxygen during the days and only use it at night.  A huge step for E and for our family.  There are no really words to describe how we feel and this is a deeply seeded emotional experience for us as a family so I will not explore these emotions openly today but I will say Hope, Faith, Love, Resilience, and Friendship, Intuition, Prayers, Positive thoughts and An Excellent Medical Team provided the foundation for us to finally reach this place and we are both grateful and inspired and wish you all:

hope and strength when you are feeling maxed out,

love and friendship when you feel alone,

resilience and faith when you feel like you can’t go on or “it” won’t get better,

trust and instincts when you hear your inner voice

and prayers and positive thoughts when you feel like you have nothing left

Today is our new favorite day as we embark on a new journey with our daughter and son as we explore freedom to go places, do things, move from room to room without cords, spend time together as a family without hazards, gain time in not needing to order weekly medical supplies and so much more.  As with any new journey, this is not the end of our challenges but we will step forward and continue to choose gratitude and hope to push us through what awaits, but for today we will smile, close our eyes, raise our face up to the sunshine and breathe deeply and be thankful for all our blessings and for bringing us this long awaited new favorite day.

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About Shannon Pruitt from 'Mynewfavoriteday'

Welcome to 'mynewfavoriteday. This space is about gratitude and connecting through being open, vulnerable and real. I hope you will enjoy my take on motivation, inspiration and advocacy and will take the opportunity to tell me of your own thoughts and stories. Why I started 'mynewfavoriteday.' I am a childhood surviving, divorced, now happily married, IVF (and now natural pregnancy) success story, working mother of 2 amazing babies who were born 12 weeks premature. As life often seems to surprise you when you least expect it, we added another sweet baby girl M to our family in July of 2013. While our angel minis, Q and E are now 7 years old, our son, Q, has thrived while our daughter, E, has had a much more difficult journey. She is considered special needs and in September of 2012 was diagnosed with a rare genetic disorder called Angelman Syndrome. And so, as she has grown, so do we as individuals and as family. How to help her, how to celebrate our differences while allowing ourselves to cope with the challenges that we never knew to expect. Thus, while much of this blog is based on our experiences (good and not-so-good), it is also based on how we must not let ourselves become victims of our circumstances but rather advocate in our own lives. A little bit about me and who I am. In my professional life I am a marketer in the Entertainment Industry; however, ‘mynewfavoriteday,’ was not born of entertainment or marketing but rather as a pathway to help myself and others as we try to define who we are as parents, family members, spouses, friends, colleagues and people. I believe in never judging a book by its cover. Every cover is different, and no matter what your cover looks like, you never know how someone's book is written. Like mine. From the outside, you might never know what truly makes me who I am or what I believe. This blog explores the pages on the inside of my book. My vulnerabilities, fears, happiness, and all my triggers through the lens of being grateful for all the amazing blessings I know I have received but sometimes forget in the challenges of daily life. Thanks again for dropping by. I hope you will come back, subscribe, comment, share, and/or just hang out and be inspired or motivated to make each day for yourself or someone else 'anewfavoriteday.' By being here, you have certainly helped to make it mine. xo, Shannon

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9 Comments on “Hope: Free, Faith: Free, Love: Free,”

  1. Faith Says:

    Yes!!! There is nothing quite the same as that first day without cords/tubes! :o)

    I’m so happy for you, the beach trips will be much better. And the fun of snuggling without the worry of pulling a cord and accidently “strangling” your child . . . get a really good cuddle for us,
    Faith

    Reply

  2. Y'vonne Says:

    Life is amazing. What an amazingly beautiful day and just in time for your wonderful weekend of celebration. Look at her precious smile. I’m so happy for you guys that is an amazing milestone. Tears of joy for you from a mom that completely understands. The day my oldest son didn’t have to do breathing treatments every four hours to get through life was wonderful (it took 2 full years).

    Reply

  3. pat Says:

    she is a beautiful little girl

    Reply

  4. Nis Says:

    What wonderful news! A new favorite day for sure. xoxo

    Reply

  5. Jen Says:

    Congratulations E and Family!!! We had so much fun with you guys at MoD March 4 Babies!
    xoxo!!

    Reply

  6. Aubree Says:

    Congratulations to the whole crew! You GO, E! Keep growing and thriving and giving us all such sweet smiles.

    Reply

  7. Pink Says:

    what fabulous news! so exciting for all of you and your new adventures. she looks absolutely blissful and gorgeous, S! loves and hugs to you all!

    Reply

  8. mynewfavoriteday Says:

    Thanks everyone for your kind words and thoughts! We are thrilled to say the least and so appreciate everyone’s sentiments. It’s great fun to celebrate this milestone under a halo of friendship.

    Reply

Trackbacks/Pingbacks

  1. A Look Back and Forward at “Mynewfavoriteyear” through Music. | mynewfavoriteday - January 1, 2012

    […] Hope:  I remember clearly the first time I heard this song. I was driving E back from her pulmonary appointment where she had just been cleared to come of oxygen during the day after 18 months.  In my elation I was fragile as we still had such a long way to go and unsure of where to put my thoughts and emotions this song came on the radio. As E sat in her car seat, tears ran down my face as I confirmed to her, that no matter what happens, “I Won’t Let Go,” […]

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