Living life, full of life ~ “Mynewfavoriteweek’ly Inspiration.”


“Live life fully while you’re here. Experience everything. Take care of yourself and your friends. Have fun, be crazy, be weird. Go out and screw up! You’re going to anyway, so you might as well enjoy the process. Take the … Continue reading Living life, full of life ~ “Mynewfavoriteweek’ly Inspiration.”

Being and staying strong while feeling powerless…hard but possible.


“Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength.”  ~Unkwown Today, I needed to be like this oak tree. … Continue reading Being and staying strong while feeling powerless…hard but possible.

Hope: Free, Faith: Free, Love: Free,


Finally getting off 24/7 oxygen support: Priceless Congratulations to our precious E, who was told yesterday by her pulmonary doctor that we can take her off oxygen during the days and only use it at night.  A huge step for E and for our family.  There are no really words to describe how we feel and this is a deeply seeded emotional experience for us as a family so I will not explore these emotions openly today but I will say Hope, Faith, Love, Resilience, and Friendship, Intuition, Prayers, Positive thoughts and An Excellent Medical Team provided the foundation for … Continue reading Hope: Free, Faith: Free, Love: Free,

Kindness + Engagement + Digital Media = Overwhelming Love


“Love is a force more formidable than any other. It is invisible / it cannot be seen or measured, yet it is powerful enough to transform … Continue reading Kindness + Engagement + Digital Media = Overwhelming Love

Bottles vs. Blackberries. Remember to “engage” not with technology but your life.


“Life gives us brief moments with another…but sometimes in those brief moment we get memories that last a life time…” ~ Unknown As I am getting … Continue reading Bottles vs. Blackberries. Remember to “engage” not with technology but your life.

In honor of courage….everyday is a new day. Take a step.


And sometimes all it takes is a quiet ask for help to show great courage. What will be your first step? Continue reading In honor of courage….everyday is a new day. Take a step.

From a Little One’s Perspective…Even When They Can’t Talk…They Love You.


“I love you more than I have ever found a way to say to you” ~ Ben Folds Since it’s nighttime and I just put my precious E & Q down to sleep, I want to say thank you to everyone who visited us today and for those who did and felt moved by “Welcome to Holland,” here is what I think E would have said to me before she went to sleep.  Thank you for this HUGE boost today for me and my family but also for everyone else that has been to Holland through their children, parents or … Continue reading From a Little One’s Perspective…Even When They Can’t Talk…They Love You.

A Quiet Reminder for Today – Keep learning.


“Life is a succession of lessons which must be lived to be understood. ~ Helen Keller I had not planned to post today, but this morning when I woke up, I felt a moment of gratitude and thought about how many lessons I am learning each day from everyone here and in my daily life.  I then lay in my bed and wondered what I would learn today (thanks to KSP who did EVERYTHING to get the twins ready this morning (in full transparency this may have contributed to my ability to recognize my moment), thanks babe!)…In the spirit of my … Continue reading A Quiet Reminder for Today – Keep learning.