The gift of the first time…there is still time.


“We must become the change we want to see.” ~ Mahatma Gandhi Ok, so perhaps that title is a little risqué, but for those of you who may think ‘mynewfavoriteday’ has gone into the gutter, it hasn’t, ok maybe sometimes, … Continue reading The gift of the first time…there is still time.

Remembering Everyday is a New Day…That’s The Easy Part, Keeping Perspective is Challenging.


  The irony of this picture is that I don’t totally subscribe to it because as I have said before I am a spiritual person; however, I do believe that we have choices and make them everyday and those are in your hands.  I had to remember that today as once again I had to confront all of my inner discomfort as Q’s Urologist called to discuss his test results from that horrible VCUG in May (clearly more traumatic for me that him as I still remember it clear as day as the “how could you betray me and tell … Continue reading Remembering Everyday is a New Day…That’s The Easy Part, Keeping Perspective is Challenging.

Chasing watermelons is easy, being “normal” is hard…


“Nobody realizes that some people expend tremendous energy merely to be normal”. ~ Albert Camus To me the word “normal” is hilarious.  Who gets to define “normal”?  And what gives the person who defined “normal” the right to be the … Continue reading Chasing watermelons is easy, being “normal” is hard…

Being and staying strong while feeling powerless…hard but possible.


“Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength.”  ~Unkwown Today, I needed to be like this oak tree. … Continue reading Being and staying strong while feeling powerless…hard but possible.

Hope: Free, Faith: Free, Love: Free,


Finally getting off 24/7 oxygen support: Priceless Congratulations to our precious E, who was told yesterday by her pulmonary doctor that we can take her off oxygen during the days and only use it at night.  A huge step for E and for our family.  There are no really words to describe how we feel and this is a deeply seeded emotional experience for us as a family so I will not explore these emotions openly today but I will say Hope, Faith, Love, Resilience, and Friendship, Intuition, Prayers, Positive thoughts and An Excellent Medical Team provided the foundation for … Continue reading Hope: Free, Faith: Free, Love: Free,

Kindness + Engagement + Digital Media = Overwhelming Love


“Love is a force more formidable than any other. It is invisible / it cannot be seen or measured, yet it is powerful enough to transform … Continue reading Kindness + Engagement + Digital Media = Overwhelming Love

Bottles vs. Blackberries. Remember to “engage” not with technology but your life.


“Life gives us brief moments with another…but sometimes in those brief moment we get memories that last a life time…” ~ Unknown As I am getting … Continue reading Bottles vs. Blackberries. Remember to “engage” not with technology but your life.