Not being the same as everyone else makes us special…that’s the point.


As I read the following quote, I felt the feeling you get as tears start to well up in your eyes and you know soon the computer screen will become a bit more fuzzy.  Perhaps it is because of the many plates I am currently trying to keep spinning without breaking them all at once, or perhaps it’s just the familiar worry that acts a haunting lullaby in the back of mind when I watch E move constantly, or perhaps it’s just what it is a moment in time where I feel a bit scared about the future for our … Continue reading Not being the same as everyone else makes us special…that’s the point.

Remembering Everyday is a New Day…That’s The Easy Part, Keeping Perspective is Challenging.


  The irony of this picture is that I don’t totally subscribe to it because as I have said before I am a spiritual person; however, I do believe that we have choices and make them everyday and those are in your hands.  I had to remember that today as once again I had to confront all of my inner discomfort as Q’s Urologist called to discuss his test results from that horrible VCUG in May (clearly more traumatic for me that him as I still remember it clear as day as the “how could you betray me and tell … Continue reading Remembering Everyday is a New Day…That’s The Easy Part, Keeping Perspective is Challenging.

“I GOT IT!” ~ A reminder about friendship and remembering to love yourself


“In everyone’s life, at some time, our inner fire goes out. It is then burst into flame by an encounter with another human being. We should all be thankful for those people who rekindle the inner spirit.” ~ Albert Schweitzer … Continue reading “I GOT IT!” ~ A reminder about friendship and remembering to love yourself

What gives you purpose? A journey worth taking…


“When you dance, your purpose is not to get to a certain place on the floor. It’s to enjoy each step along the way.” ~ Wayne Dyer … Continue reading What gives you purpose? A journey worth taking…

Hope: Free, Faith: Free, Love: Free,


Finally getting off 24/7 oxygen support: Priceless Congratulations to our precious E, who was told yesterday by her pulmonary doctor that we can take her off oxygen during the days and only use it at night.  A huge step for E and for our family.  There are no really words to describe how we feel and this is a deeply seeded emotional experience for us as a family so I will not explore these emotions openly today but I will say Hope, Faith, Love, Resilience, and Friendship, Intuition, Prayers, Positive thoughts and An Excellent Medical Team provided the foundation for … Continue reading Hope: Free, Faith: Free, Love: Free,

Kindness + Engagement + Digital Media = Overwhelming Love


“Love is a force more formidable than any other. It is invisible / it cannot be seen or measured, yet it is powerful enough to transform … Continue reading Kindness + Engagement + Digital Media = Overwhelming Love

Bottles vs. Blackberries. Remember to “engage” not with technology but your life.


“Life gives us brief moments with another…but sometimes in those brief moment we get memories that last a life time…” ~ Unknown As I am getting … Continue reading Bottles vs. Blackberries. Remember to “engage” not with technology but your life.

Hear your inner voice, use your outer voice and know it matters.


“Your inside voice, called instincts, is trying to tell you something…use your outside voice to speak up.  Just start talking and the words will come…don’t be … Continue reading Hear your inner voice, use your outer voice and know it matters.

Count your blessings…sometimes we forget how many we have. Today is a good day to remember.


“Better to lose count while naming your blessings than to lose your blessings to counting your troubles.”  ~Maltbie D. Babcock Today is a gentle reminder for … Continue reading Count your blessings…sometimes we forget how many we have. Today is a good day to remember.