Risking Hope.

April 9, 2012

Uncategorized


To love is to risk not being loved in return. To hope is to risk pain. To try is to risk failure, but risk must be taken because the greatest hazard in life is to risk nothing.” ~ Unknown

Today is a big day in the Pruitt household as the minis are off to college!  Ok, so it’s not really college, but it’s an Early Intervention Program at UCLA where E will go as a student and Q as what they call a “Peer Model” and I am full of mixed emotions.

The past few weeks have been fraught with anxiety, laughter, some tears and lots of hope.  As I type this post, I somehow feel peaceful, more peaceful than I have felt in weeks. Perhaps the anxiety was in some way due to the preparations which were ever so thorough based on the fact this is a medically based program. The preparation on their emergency disaster kits alone nearly put me over the edge. When you are running all over town looking for a “Space Blanket” (those shiny silver blankets they put over people in major disasters to help them retain their body heat if they go into shock) will put unthinkable ideas in your head.  Needless to say, the Mini Pruitts’ Disaster Kits rival those of people hiking Everest.  There are things in there that weren’t even on the list, but if something happens, they will be safe until I can get to them.  As you can probably tell, the thought of something happening to them where I would not be able to get to them was almost more than I could take and comprehend.

On top of all those mixed emotions, everyone in the house has been sick, with E suffering the brunt of it and that means me too. More than twice in the past 10 days, I have held her as she screamed in my arms. Sometimes vomiting, feverish, achey, and sometimes just screaming out of pure exhaustion and/or the discomfort of her 2 year molars.  But alas, she cannot tell me and the bigger she gets, the stronger she gets and the more desperate I become for the hope that she will have words at some point to tell me what’s wrong.  The emotional taxation I have felt over the past 2 weeks has been like being trapped on a rollercoaster where I can’t see the next twist or turn. One minute we are all laughing and holding our hands up as we go up and down over the gentle hills and the next minute we are in a dark tunnel throttling downward at top speed only to suddenly head upward with the exhilaration that we made it through.

While E would scream, Q would inevitably come running as he gets very distraught when she cries resulting in him once tripping and slamming his head into the hardwood floor on top of a previous injury resulting in golf ball size swelling and all 3 of us in tears. Last Wednesday was my proverbial straw.  As I sat holding E while she screamed I started to bawl.  Crying, bouncing, looking up and asking for a break. For a much needed hall pass. A minute to gather my emotions to have some peace. To not feel like things were going to come tumbling down or more specifically that I was not going to come tumbling down.  I was crying so hard I could feel the mascara running down my face and stinging my eyes. I wiped my eyes with my shoulder and repeated my requests out loud while bouncing and swaying E.  And then suddenly, E stopped crying. She was watching me cry!

She looked at me with a grin in her eyes and it slowly spread to her lips and then her mouth. She gave me a small amused grunt and waited for me to collect myself. I watched her nearly dumbfounded and as soon as she was confident I was going to make it, she started to scream.  At that point I started to laugh.  Sway and laugh.  Laugh because I couldn’t believe what had just happened, laugh because I had nothing left and laugh because it was really the only thing to do.

Sometimes we get just what we need when we least expect it. I got just a dose of hope that I wasn’t going to fall apart and that she was ok and this was going to pass. Hope.

So tomorrow as we go off into our new adventure, I am nervous. Not so much about having them go out of the home or having them away from me, but nervous to hope. I am hopeful for progress, to see great strides, hopeful for something that even I don’t really understand.  All I know is that whatever it is it brings my little E closer to a 2 and 1/2 year old.  I know that whatever happens it will be ok, but I want to be able to hope…to feel the excitement and nervousness so intensely that it almost brings me to tears because she is my baby. She is my girl who fights so hard to do anything and everything.  So of course, no matter what happens, how big or small, fast or slow, I will be by her side cheering for her, but today, I want to risk hope.  Because, my little E is off to her next level of progress and Q is by her side. Today is full of the best kind of risk.

As I risk amazing faithful hope in my heart today, I hope you feel the same. Hope is quite powerful and today it brings me to my knees, but that’s ok and it makes today ‘mynewfavoriteday.’  I wish you hope for whatever is bubbling in your heart and mind. To not be afraid of it. It’s ok to hope even if there isn’t something you can do to surely influence your desired outcome. Let the hope make today ‘yournewfavoriteday.’

And please wish us all some good positive hope today as we walk and scoot one foot in front of the other through our door of hope.

Featured image shared from vitalyogathebook.com

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About Shannon Pruitt from 'Mynewfavoriteday'

Welcome to 'mynewfavoriteday. This space is about gratitude and connecting through being open, vulnerable and real. I hope you will enjoy my take on motivation, inspiration and advocacy and will take the opportunity to tell me of your own thoughts and stories. Why I started 'mynewfavoriteday.' I am a childhood surviving, divorced, now happily married, IVF (and now natural pregnancy) success story, working mother of 2 amazing babies who were born 12 weeks premature. As life often seems to surprise you when you least expect it, we added another sweet baby girl M to our family in July of 2013. While our angel minis, Q and E are now 7 years old, our son, Q, has thrived while our daughter, E, has had a much more difficult journey. She is considered special needs and in September of 2012 was diagnosed with a rare genetic disorder called Angelman Syndrome. And so, as she has grown, so do we as individuals and as family. How to help her, how to celebrate our differences while allowing ourselves to cope with the challenges that we never knew to expect. Thus, while much of this blog is based on our experiences (good and not-so-good), it is also based on how we must not let ourselves become victims of our circumstances but rather advocate in our own lives. A little bit about me and who I am. In my professional life I am a marketer in the Entertainment Industry; however, ‘mynewfavoriteday,’ was not born of entertainment or marketing but rather as a pathway to help myself and others as we try to define who we are as parents, family members, spouses, friends, colleagues and people. I believe in never judging a book by its cover. Every cover is different, and no matter what your cover looks like, you never know how someone's book is written. Like mine. From the outside, you might never know what truly makes me who I am or what I believe. This blog explores the pages on the inside of my book. My vulnerabilities, fears, happiness, and all my triggers through the lens of being grateful for all the amazing blessings I know I have received but sometimes forget in the challenges of daily life. Thanks again for dropping by. I hope you will come back, subscribe, comment, share, and/or just hang out and be inspired or motivated to make each day for yourself or someone else 'anewfavoriteday.' By being here, you have certainly helped to make it mine. xo, Shannon

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15 Comments on “Risking Hope.”

  1. dmmacilroy Says:

    Sending the ‘luck of the MacIlroys’ your way, Shannon. All will be well.

    Aloha,

    Doug

    Reply

  2. Kasey mathews Says:

    Shannon, there will sound so strange, but as I read this achingly beautiful, bare-your- soul post, I felt jealous. Jealous? Yes, because 9 years ago when Andie was 2 and not talking and back and forth to doctors and hospitals etc., for testing and studies and I was absolutely losing my mind, all that nervous buzzing just recirculated within my system. I’m jealous b/c your emotions found there way to the page, freeing some much needed breathing space within your system, and allowing others to carry some of the weight of your worry so that you don’t have to do it alone. When you have a quiet moment (???) skip ahead to the chapter in my book called glasses, pg 194. It talks about how Andie wasn’t talking and how once glasses went on her face, her words began tumbling out (along with other therapies etc). My love will be with all of you today, and I’llmvisualize the future day when your little gal is chit-chattering away, recounting every blessed detail of the latest movie she’s seen, just as mine is doing right now!!!

    Reply

    • Shannon Pruitt from 'Mynewfavoriteday' Says:

      Thanks so much Kasey! I know exactly what you mean as that’s what I was doing until I started blogging and thank goodness I did, because it was just as you describe it a place to breathe. I desperately needed it and it’s a place I can come where I can just be. I will read that chapter and I am so happy that Andie is doing so well…I just love that and one day I am hopefully E will be thriving just as A is today. Thank you for your love and support! xoxo

      Reply

  3. Carrie @Tempo Life Coaching Says:

    Sending my hope to you today…hope for a full and loving environment for both your minis to grow and flourish. Hope for you that you can sit back, relax, and enjoy this time in their lives. You are blessed by those minis, and they are blessed for the mommy they have in you. And the rest of us are blessed by your beautiful sharing of all this. Thank you!

    Reply

    • Shannon Pruitt from 'Mynewfavoriteday' Says:

      Thanks so much Carrie, for all of this. We are so blessed and so happy to have friends like you who are supporting us. After this morning I am not sure if I will get to relax ( I am not so good at that, maybe I need a life coach:)) but I will enjoy this…watching them as they took it all in and enjoyed the program this morning was a priceless feeling for me. Thank you so much for always being so wonderful. xo

      Reply

  4. Katy Says:

    So much hope and love your way. And a gentile gift of respite for you dear friend. That is a lot for anyone to handle, even you. Xo

    Reply

  5. Running from Hell with El Says:

    Sending you buckets of hope and love my friend. I have had those moments, those proverbial tear your hair out and weep in exhaustion moments, so I was reading and feeling right there with you. xoxo.

    Reply

  6. Elastamom Says:

    Oh I remember the start of “college” so clearly. I was soooo stressed out about it. I’m hoping we hear lots of good things!! Hope springs eternal. 🙂

    Reply

  7. singleworkingmomswm Says:

    Sending lots of hugs and wishes through the blogosphere!

    Reply

  8. Jamie Walker (@chosenchaos) Says:

    I have been thinking of all of you. Anxious to read the next post in my reader to see how it’s going. Hold on for the ride, the bumps are worth it.

    Reply

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