Ordinary became extraordinary…


Like every Saturday for the past 13 months since both babies came home from the NICU, we were spending time in the afternoon playing in the living room.  Q was “salamandering” (Yes, I know that this is not an actual verb but it’s a hilarious version of commando style crawling that apparently when done properly a 30 inch 22 lb toddler looks like a salamander) all around the room to pull himself on every piece of furniture he could find and E and I were working on the exercises from her Physical and Occupational therapists.   All of a sudden, … Continue reading Ordinary became extraordinary…

Bridging the gap between pain and being grateful


Praise the bridge that carried you over.  ~George Colman 2 nights ago, I knelt over my 17 month old daughter Emma’s chair as I tied her down and cried.  Cried for the fear that I feel about her future, cried for the frustration I feel that she can’t just go down to sleep like normal babies, cried for the overwhelming helplessness that occasionally creeps over me.  I am naturally inclined to be optimistic, lemons from lemonade, every cloud has a silver lining person…but sometimes, all the things that are happening day in and day out catch up and get the … Continue reading Bridging the gap between pain and being grateful